User-led organisations in London
Report on Deaf and Disabled People's Organisations (User-Led Organisations) in London undertaking work in relation to personal budgets
Inclusion London commissioned research to look at how far Deaf and Disabled People's Organisations in London were undertaking work in relation to personal budgets. Inclusion London received funding from the Department of Health to undertake this research as part of meeting the government's commitment to ensuring a User-Led Organisation (ULO) in every local authority area by 2010.
The research found a very mixed picture across London boroughs, with developed work in some areas while in a number of boroughs it was not possible to track down a currently-active, pan-impairment ULO.The report found differing conceptions between local authorities and DDPOs in some areas over the meaning of 'involvement' and 'user-led'. Problems of security of funding abounded, as did concern about the future independence of organisations to properly represent disabled people's interests: a number of organisations were fearful the criticism of local authority policy would lead to funding cuts for their organisations and therefore a loss for disabled people. Consequently care had to be taken in the report to ensure anonymity for DDPOs which participated in the survey.
The report can be downloaded below.